Lupus Awareness Month

There are diseases that are very high profile. Diseases like breast cancer, and, more recently, Motor Neurone disease, have been highlighted by Internet campaigns like the ‘no make-up selfie’ and the Ice bucket challenge. But there are other diseases that many of us know nothing about, despite the fact that they blight thousands of lives all over the world. Lupus is just one of those diseases.

Lupus is a disease of the immune system that affects one in 5,000 white women, one in every 1,000 women of Asian origin and one in 625 women who are of African Caribbean descent. Lupus can also affect men.  I first became aware of the disease a few years ago when I read of a young actress who had died from Lupus, who had created a brilliant film before succombing to the disease. N’Deaye Ba had starred in Casualty, Sea of Souls and Jericho, but died at the age of 32. With her mother, she had created a brilliant piece of film called ‘The Wolf Inside’ (Lupus means Wolf in Latin) which chronicled her battle with Lupus. N’Deaye’s was not diagnosed in time for her story to end well, but her legacy is a film that will help others.

RobertLindsay

N’Deaye Ba in Jericho

This month is Lupus awareness month, and Benenden Health have posted a very informative and interesting post about the disease on their website.(You can view the post here.) The post highlights the many different forms of Lupus, along with the symptoms a sufferer may exhibit, like extreme tiredness,  swollen and painful joints, or a skin rash that is hard to explain. Lupus can also lead to hair loss, in some cases extreme. If you do exhibit any, or all of the symptoms mentioned above, you can ask your doctor for tests. Early diagnosis can help sufferers to manage their condition.

systemic_lupus_erythematosus

With the likes of Lady Gaga, Selina Gomez and ‘Third Rock from the Sun’ star Kristen Johnson all high profile Lupus sufferers, it may now be the time that people gain more understanding and knowledge of what is a terrible. yet often ignored, disease.

*In collaboration with Benenden Health.

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6 thoughts on “Lupus Awareness Month

  1. Oh wow, never knew that Lady Gaga/Selena Gomez suffered from Lupus. I worked in a lab researching a protein which is a future Lupus drug target for the last year so I completely agree, there’s a real lack of public awareness with this!

    • Yes, I was doing some research for this post and was shocked to see this info too, but, yes apparently they are sufferers.

  2. Great post! I know a lot about Lupus. My mother has it. It wasn’t a recognised disease when she was a child. Consequently, it wasn’t until adulthood that she was properly diagnosed. That so many celebritiy sufferers are now talking about it has really helped to raise its public profile. Lupus is a dreadful disease, and one that can, and does, kill. It also causes terrible sun rashes – my mum has never been able to sunbathe. Consequently, she has an incredibly youthful complexion – every dark cloud! Yes you’re right, men can get it but as far as I’m aware they represent just 1% of all sufferers. Tx

  3. I have heard of this disease before but didn’t know it could be fatal and didn’t know the symptoms… Neither did I realise Lady Gaga suffered from it. I was quite in the dark until I read your post so I think this is a really great way to bring it to peoples attention.xx

  4. I first heard of Lupus a couple of years ago when Mercedes Scelba-Shorte who suffers from it was a contestant on Americas Next Top Model.

    They covered it really well and she explained how it effected her. She made it to the final.
    x

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